Before he became a patient at the Weinberg Family Cerebral Palsy Center, Jason Lieberman had to be patient with the healthcare professionals who treated him. By the time he got to college, Jason would often have to walk his physical therapist through his treatment plan. His longtime neurologist and unofficial primary care physician Dr. Arnold Gold, the former Chair of Columbia’s Pediatric Neurology Department, was the only healthcare professional who understood how to treat him effectively.
On June 1, the 2018 Marilyn R. Lindenauer Distinguished Speaker Series hosted a panel of experts that discussed “Cerebral Palsy and Genetics: Learning What We Don’t Know” at the prestigious Faculty Club in Columbia University Irving Medical Center (CUIMC). Continue reading “2018 Lindenauer Lecture Presents Cerebral Palsy and Genetics: Learning What We Don’t Know”
2018 Marilyn R. Lindenauer Distinguished Speaker Series:
Cerebral Palsy and Genetics: Learning What we Don’t know
Cerebral palsy and genetics studies over the last few years have revealed that at least 30% of CP has a genetic basis. However, the suspicion is that even more CP cases have a genetic basis that we have not yet established. Our interest is to develop projects that will allow us to identify these important genetic relationships.
The issues being discussed by the panel are cutting edge and will have important implications for patient care – “precision medicine” for CP. Those whose clinical or research interests revolve around childhood onset neurodevelopmental disorders will be fascinated by this discussion of the genetics of CP.
The panel will be moderated by David P. Roye, Jr., MD, Executive Director, Weinberg Family CP Center, Department of Orthopedic Surgery.
Reception to follow 6 -7 pm
Cerebral Palsy and Genetics Panelists
- Vimla Aggarwal, MBBS
Assistant Director, Laboratory of Personalized Genomic Medicine, Department of Pathology
- Kwame Anyane-Yeboa, MD
Interim Director, Division of Clinical Genetics, Department of Pediatrics
- Mary D’Alton, MD
Chair, Department of Obstetrics & Gynecology
- Donna Garey, MD
Medical Director, Neonatal Followup Program, Department of Pediatrics
- David Goldstein, Ph.D.
Director, Institute for Genomic Medicine, Columbia Vagelos College of Physicians & Surgeons
- Joshua Hyman, MD
Associate Director, Weinberg Family CP Center, Department of Orthopedic Surgery
- Charles Marboe, MD
Vice Chair, Department of Pathology and Cell Biology
Throughout the United States, children’s hospitals have extensive experience treating kids with cerebral palsy and similar neuromotor disabilities. However, when these patients turn 18, their care options dwindle and other complications associated with aging arise. Weinberg Family Cerebral Palsy Center (WFCPC) Executive Director David Roye, MD has made it imperative to be on the forefront of transitional CP care and research.
When Dr. Annie Kaplan’s nephew passed away during routine oral surgery, she turned her grief into action. Through tireless advocacy, she helped pass Caleb’s Law in the California State Assembly, which is the first step in creating guidelines for dental anesthetic use on children. Recently, she shared her story and strategies for legislative advocacy in healthcare with physicians, faculty, and administrators from the Weinberg Family Cerebral Palsy Center and Columbia University Medical Center.
Continue reading “Lessons in Legislative Advocacy: Effective Strategies for the CP Community”
Professor of Mechanical Engineering and of Rehabilitation and regenerative medicine at Columbia Engineering and a member of the Weinberg Family Cerebral Palsy Center Scientific Advisory Board Sunil Agrawal, PhD has published a pilot study in Science Robotics. The study demonstrates a robot-driven device that improves posture and walking in children with crouch gait by enhancing their muscle strength and coordination.
Since he joined Columbia Orthopedics in 2000, Weinberg Family Cerebral Palsy Center Associate Director Joshua E. Hyman, MD has been an advocate for treating patients with cerebral palsy. Although CP isn’t progressive, there is a common symptom that could become more prevalent or intensify as patients grow older: chronic pain. Dr. Hyman is discovering ways to ease it.
On June 7, the 2017 Marilyn R. Lindenauer Distinguished Speaker Series hosted Jason Carmel, MD, PhD, a pediatric neurologist and neuroscientist, to discuss “Systems Neurosciences Insights Into Hemiplegic Cerebral Palsy” at the prestigious Faculty Club in Columbia University Medical Center (CUMC).
Kip Guja, a CP patient of Columbia Orthopedics provider and Weinberg Family Cerebral Palsy Center Executive Director Dr. David Roye, has matched into Stanford’s combined Diagnostic Radiology and Nuclear Medicine Residency Program, his top choice. The program is extremely selective and only offers one position per year.
TUESDAY, March 7, 2017 (HealthDay News) — Women who are overweight or obese during pregnancy may be increasing the chances that their baby could be born with cerebral palsy, a new study suggests.