Patient Spotlight: Lorena and David

Meet Lorena Cruz and her son, David Justo-Cruz:

Lorena and her son David who is now 16 years old has cerebral palsy. He has been a part of the Weinberg Family CP Center since the very beginning and a patient of Dr. Hyman’s for nearly all of his life. Lorena gives us insight into her and David’s experience with WFCPC.

How did you find the Weinberg Family CP Center: 

When David was around 1.5 years old is when we started coming to NewYork-Presbyterian and Columbia University Irving Medical Center, before the Weinberg Family CP Center was even created. I noticed David was falling behind physically around the time he should be learning how to walk. I saw a Neurologist who told me that David will never walk in his life, so I did what was best for David and began getting second opinions all over the country and even back in my home country. Along that journey I was recommended to a neurologist Dr. Cigdem Ackman at Columbia Medical and NYP, who saw David and referred us to Dr. Joshua Hyman.

How has the Weinberg Family CP Center impacted your care: 

The Weinberg Family CP Center has impacted David’s care because I have learned different pieces of advice from the Center and also from other parent’s experiences when they have expressed themselves at different group meetings offered over the years that really helped us in our journey and David’s overall care. 

What advice can you give other parents: 

The advice I would give to other parents is to never quit, to have faith, patience, and lots of love for their children. As parents, we cannot ever get tired of helping them get better. The reward for both the parent and child you can receive by persevering is so worthy and gratifying in the end. Also, as a parent I have learned many things I didn’t know. I feel more comfortable asking questions now, so don’t be afraid to ask questions. 

What is one thing you would like people to know about the Weinberg family CP Center and Dr. Hyman? 

Well, it’s really hard for me to find the exact or perfect words to express how David and I feel about Dr. Hyman. All I can say is that I’m so thankful for everything the WFCPC and Dr. Hyman has done for David and we are so grateful to have Dr. Hyman in our lives the last 15+ years. He’s the best doctor and human being and we love him!!

What does David like to do in his free time?

In his free time, David, who was told he would never walk in his life, is thriving in Basketball and doing everything he wants now, whether it is working out or dancing he doesn’t complain about the braces he has to wear it’s a part of his normal. “You can tell him you can’t do this and he will figure out a way to do it,” said mom Lorena.

Click to read his full patient story!

Cerebral Palsy and Genetics: Learning What We Don’t Know

Click here to RSVP

2018 Marilyn R. Lindenauer Distinguished Speaker Series:

Cerebral Palsy and Genetics: Learning What we Don’t know

Cerebral palsy and genetics studies over the last few years have revealed that at least 30% of CP has a genetic basis. However, the suspicion is that even more CP cases have a genetic basis that we have not yet established.  Our interest is to develop projects that will allow us to identify these important genetic relationships.

The issues being discussed by the panel are cutting edge and will have important implications for patient care – “precision medicine” for CP. Those whose clinical or research interests revolve around childhood onset neurodevelopmental disorders will be fascinated by this discussion of the genetics of CP.

The panel will be moderated by David P. Roye, Jr., MD, Executive Director, Weinberg Family CP Center, Department of Orthopedic Surgery.

Reception to follow 6 -7 pm

Cerebral Palsy and Genetics Panelists

Progressive Pain in a Non-Progressive Disability: How Dr. Hyman Treats Chronic Pain in CP Patients

Since he joined Columbia Orthopedics in 2000, Weinberg Family Cerebral Palsy Center Associate Director Joshua E. Hyman, MD has been an advocate for treating patients with cerebral palsy. Although CP isn’t progressive, there is a common symptom that could become more prevalent or intensify as patients grow older: chronic pain. Dr. Hyman is discovering ways to ease it.

Continue reading “Progressive Pain in a Non-Progressive Disability: How Dr. Hyman Treats Chronic Pain in CP Patients”