Weinberg Family Cerebral Palsy Center honored at 2019 Cerebral Palsy Foundation Gala

(Debby Weinberg and David Roye, MD, accept one of the three Excellence Awards given out at the gala) 

The Cerebral Palsy Foundation hosted their 2019 Design for Disability Gala, on October 28, 2019. This annual benefit event provides an opportunity to recognize and celebrate the positive impact being made to improve the lives of people with disabilities through healthcare, research, and design. The Master of Ceremonies for the evening was Jason Benetti, an ESPN and Chicago White Sox Sports Announcer with cerebral palsy (CP).

The Weinberg Family Cerebral Palsy Center (WFCPC) was honored to be one of three Excellence Award winners of the gala. Specifically, the WFCPC was recognized for the commitment to lifespan care for individuals with CP.

“The Weinberg Family Cerebral Palsy Center is humbled and honored to receive this award,” said Dr. David P. Roye, Jr., Executive Medical Director of the Center. “We are proud to have a partner like the Cerebral Palsy Foundation, whose mission so closely aligns with our own a commitment to making a difference and improving the quality of life for people of all ages living with Cerebral Palsy. The resources that the Cerebral Palsy Foundation offers to patients and caregivers are integral to supporting the medical care provided by our faculty and staff. We look forward to working together in service to our patients and the cerebral palsy community, and want to thank the Cerebral Palsy Foundation for this tremendous honor.”

The event also featured an innovative line of accessible accessories created by a partnership between the Fashion Institute of Technology (FIT) Master of Fine Arts program in Fashion Design; Barbara Bradley Baekgaard, Co-Founder and Chief Creative Officer of Vera Bradley; and the Cerebral Palsy Foundation.

To learn more about the lifespan care offered at WFCPC for individuals with CP, click here.

To learn more about the Cerebral Palsy Foundation, click here. 

First Annual Adaptive Ski Trip

“I never would have thought it would be possible for me to ski!”

On Friday, March 1, 2019, the Weinberg Family Cerebral Palsy Center hosted our first annual Adaptive Ski Trip – it was an amazing success!  Seven patients, ages 8 to 28, and their family members joined us at Windham Mountain for a beautiful day of skiing, fun, and laughs.

The patients participated in ski lessons, led by certified instructors from the Adaptive Sports Foundation. It was the first time on the mountain for many of our patients, and one participant said “I never would have thought it would be possible for me to ski.” The patients had an incredible time, and the parents enjoyed watching their children be happy, engaged, and active.

A special thanks to faculty and staff at the Weinberg Center for making this day possible!

Connecting Patients to Better Mental Healthcare: The Weinberg CP Center Social Work Team

Treating cerebral palsy is more than just caring for patients’ physical wellbeing – it’s their mental healthcare too. Jan Moskowitz, LCSW, and Sabrina Miranda, LCSW comprise the social work team at the Weinberg Family Cerebral Palsy Center and are at the forefront of treating patients’ mental health needs through numerous approaches.

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Patient Spotlight: Jason Lieberman

Before he became a patient at the Weinberg Family Cerebral Palsy Center, Jason Lieberman had to be patient with the healthcare professionals who treated him. By the time he got to college, Jason would often have to walk his physical therapist through his treatment plan. His longtime neurologist and unofficial primary care physician Dr. Arnold Gold, the former Chair of Columbia’s Pediatric Neurology Department, was the only healthcare professional who understood how to treat him effectively.

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Hiroko Matsumoto Nominated for AACPDM Gayle G. Arnold Award

Director of Research Hiroko Matsumoto, PhD was nominated for the 2018 American Academy of Cerebral Palsy and Developmental Medicine (AACPDM) Gayle G. Arnold Award of Excellence. This was for her work on the abstract “Validation of a Previously Published Risk Severity Score Predicting Surgical Site Infection after Spinal Deformity Surgery in Patients with Cerebral Palsy Utilizing a Large, Separate Cohort.” This award is presented annually at the AACPDM annual convention and is the most prestigious award of the Academy.

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Lessons in Legislative Advocacy: Effective Strategies for the CP Community

When Dr. Annie Kaplan’s nephew passed away during routine oral surgery, she turned her grief into action. Through tireless advocacy, she helped pass Caleb’s Law in the California State Assembly, which is the first step in creating guidelines for dental anesthetic use on children. Recently, she shared her story and strategies for legislative advocacy in healthcare with physicians, faculty, and administrators from the Weinberg Family Cerebral Palsy Center and Columbia University Medical Center.
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Self-Reporting Devices Help Patients with Nonverbal CP

When a nonverbal child is in pain, it’s usually the parent who acts as the interpreter. Does the child behave differently, or move in a different way? But being parents, they may be prone to bias. Healthcare professionals have therefore been seeking objective ways to assess pain and discomfort in nonverbal patients — such as intellectually developmentally disabled children with cerebral palsy — using self-reporting devices otherwise known as “augmentative and alternative communications” tools.

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