Before he became a patient at the Weinberg Family Cerebral Palsy Center, Jason Lieberman had to be patient with the healthcare professionals who treated him. By the time he got to college, Jason would often have to walk his physical therapist through his treatment plan. His longtime neurologist and unofficial primary care physician Dr. Arnold Gold, the former Chair of Columbia’s Pediatric Neurology Department, was the only healthcare professional who understood how to treat him effectively.
On June 1, the 2018 Marilyn R. Lindenauer Distinguished Speaker Series hosted a panel of experts that discussed “Cerebral Palsy and Genetics: Learning What We Don’t Know” at the prestigious Faculty Club in Columbia University Irving Medical Center (CUIMC). Continue reading “2018 Lindenauer Lecture Presents Cerebral Palsy and Genetics: Learning What We Don’t Know”
Director of Research Hiroko Matsumoto, PhD was nominated for the 2018 American Academy of Cerebral Palsy and Developmental Medicine (AACPDM) Gayle G. Arnold Award of Excellence. This was for her work on the abstract “Validation of a Previously Published Risk Severity Score Predicting Surgical Site Infection after Spinal Deformity Surgery in Patients with Cerebral Palsy Utilizing a Large, Separate Cohort.” This award is presented annually at the AACPDM annual convention and is the most prestigious award of the Academy.
When Dr. Annie Kaplan’s nephew passed away during routine oral surgery, she turned her grief into action. Through tireless advocacy, she helped pass Caleb’s Law in the California State Assembly, which is the first step in creating guidelines for dental anesthetic use on children. Recently, she shared her story and strategies for legislative advocacy in healthcare with physicians, faculty, and administrators from the Weinberg Family Cerebral Palsy Center and Columbia University Medical Center.
Continue reading “Lessons in Legislative Advocacy: Effective Strategies for the CP Community”
On June 7, the 2017 Marilyn R. Lindenauer Distinguished Speaker Series hosted Jason Carmel, MD, PhD, a pediatric neurologist and neuroscientist, to discuss “Systems Neurosciences Insights Into Hemiplegic Cerebral Palsy” at the prestigious Faculty Club in Columbia University Medical Center (CUMC).
The Weinberg Family Cerebral Palsy Center hosted Dr. James Galloway for the 2015 Marilyn R. Lindenhauer Lecture.
When a nonverbal child is in pain, it’s usually the parent who acts as the interpreter. Does the child behave differently, or move in a different way? But being parents, they may be prone to bias. Healthcare professionals have therefore been seeking objective ways to assess pain and discomfort in nonverbal patients — such as intellectually developmentally disabled children with cerebral palsy — using self-reporting devices otherwise known as “augmentative and alternative communications” tools.
Most people can reach for a cup of coffee that they are not looking at and successfully bring it to their mouths. But for people with cerebral palsy who have hemiplegia, that proprioceptive skill is missing. They may not reach the cup at all, or if they do grasp it with the involved arm, they may end up tipping the cup over. Moreover, the lack of control on the affected side often gets progressively worse as these patients learn to favor the dominant side. To improve that scenario in hemiplegic children with cerebral palsy, clinical investigators are teaming up with engineers to devise robotic assistance devices to “retrain their brains,” with the goal of enhancing function on the involved side of the body.
The Weinberg Family Cerebral Palsy Center at Columbia University launched a Distinguished Speaker Series with the inaugural event on June 12th featuring Dr. Scott Wright, Professor of Medicine at Johns Hopkins.
The Weinberg Family Cerebral Palsy Center was featured in New York-Presbyterian (NYP)’s January 2014 edition of Advances in Orthopedics. Read the complete article here: